Tuesday, August 09, 2011

For RAWarrior and Everyone Else Who Requested That I Update Again

Ok. So I may have lied a little when I said I would start posting again. I've had a crappy year and a half and have had very little good to write about, so I chose not to write. In retrospect we also had quite a few blessings as well, but you know how it is when you're going through the crappy stuff. This here blog post is gonna be about Rheumatoid Arthritis (RA) and pain relief. A blogger that I greatly respect posted this blog http://http://rawarrior.com/rheumatoid-arthritis-pain-relief-what-do-you-know/ to ask about doctors and pain relief for people with RA. Since above stated crappy year was due, largely in part, to pain problems associated with my RA, I thought I should jump back on the horse, or bicycle, or whatever. I will be posting more about my wonderful boys later. Promise. Again.
RAWarrior asked a few questions about RA and pain relief in her blog. So I'm just gonna copy those questions the answer them. Sounds simple, let's see if I can do this.

1. Do people have sufficient pain relief? Are medications sufficiently prescribed? Do they work?

Those of you who know what I've been going through already know the answer to this. NO!!!!!!!!!!!!!!!!!!!!!!!!!!!!. In HUGE CAPS and many exclamation points. I am in pain throughout the day and night and yet have been told I'm not in an RA flare, but a fibromyalgia flare. However, feels like both to me. I am on pain meds would feel like without anything. Have SERIOUSLY considered within the past six months, quitting everything, infusions, prednisone, methotrexate.......everything but the vitamins. But once again, if I feel this crummy on stuff, how am I gonna feel off stuff?

2. Which doctors prescribe medications for Rheumatoid Arthritis pain relief? Pain management specialists? Rheumatologist practices? General practitioners?

My Rheumatologist prescribes pain relief meds, though I'm trying to find a RELIABLE pain management specialist. The one I saw for my arm that has been numb for 4 months said the same thing I've been getting from alot of specialists lately. I shouldn't be feeling this way. The drugs and therapy I'm on should be helping, but she gave no indication as to why I am and why they're not.

3. Which methods of Rheumatoid Arthritis pain relief work? Eastern medicine like acupuncture? Spiritual techniques like meditation? Traditional physical methods like heat, ice, or rest?

I have have not tried acupuncture, but am currently doing some research on it. Something has to work, right? Meditation and prayer helps my mindset about the pain, but doesn't help the pain. So, it does do something, I guess. I've been told no Heat, but heat makes it feel better for a while, but then it hurts worse. Ice actually causes me great pain (am I the only one??). Rest helps the fibromyalgia, but since I still have severe morning stiffness and soreness (yes, even after an afternoon nap), I don't think it helps with the RA. Plus, since I have a 6 yr old with special needs, rest is kinda hard to come by during the day when he's home..

OK. That's about all folks:) I have an infusion on Thursday and my arthroscopic synovectomy on my right knee will probably be on the 10th of September (waiting for Michael's first week of school).


Kelly said...

You are not the only one who says ice/cold hurts. Most of the time, I'm that way too. If there's swelling, ice can help but usually heat feels better to me. I've got ideas about why it may be, but I wanted you to answer your question. Even though it may have been rhetorical. ;)
Thanks for posting this week - I'm honored!

Lisa H. said...

Ice kills me. I don't use it at all, or any of those icy-hot lotions either. Makes all the pain worse.

daina said...

Thanks Kelly and lisa, and no Kelly, it wasn't rhetorical:)